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Torpedo Tubes

March 09, 2007 | Category: Mother to the First Power



Here's the thing.

No.

Wait.

It's not that.

What I mean to say is that I realized that getting serious about the already serious was what was...

No, that's not it, either.

See, now, I've got myself confused.

Worst kept secret in the world? I withdraw in a crisis. Sink inside my little bluebell mind and blink slowly. Processing. Processing.

Sure, it looks like I'm all cool and Lauren Bacall.

Waitl. I mean, when I'm nervous I get chatty. Have you seen me nervous? It's like a string gets pulled between my shoulder blades.

But that's nervous.

That's not a crisis. That's not looking down at blood pouring out of a wound.

Once we get to blood, well, that's when I start to look sauve.

Except, it's not real.

I realized this about myself once upon a time at a Lesbian bar in Ravenswood.

I don't know how many years ago.

But there was this other group of women. And one of them knew my friend's girlfriend. They had dated at some point and it had ended badly. So there was my friend and her girlfriend and this other woman and people all shouting and throwing issues and unresolved relationships at each other like arrows and the bouncer (yes, there was a bouncer) was all posturing by the door and issuing warnings.

Then someone raced to the bathroom and then someone else started crying over by the jukebox.

I sat on my stool and drank my G&T and when Nina the bartender asked me if I knew what was going on, I said 'Hell, no," ordered another round.

Then somewhere there was a slap.

So the next thing you knew, we were kicked out and piled up in the hatchback driving back home and everyone was all talking at once and, finally, about 5 blocks from the bar, Lyn pulls the car over with a squeal and shouts "OK, I need to process."

But me? I was already deep inside my mind. I was halfway through processed, curled up in a mental ball, sorting it out. And Lyn looks at me, crowded up in the backseat with our friends, and said something like "You kept your cool."

And I said something like "Nah, I barely know what happend. I like to grab a head start on processing a situation. In fact I start processing so early I usually miss everything that happens after the start." Which means, see, that I seem all deadpan but really I'm just clueless and mentally constipated. Plus? Dealing with stuff seems to take me twice as long.

Ask CD. Everyone once in a while, he'll be like "What's wrong?" And I'll be like "You jacked up the credit card for a LEGO ROBOT THING??" And he'll be all, "Hon, that was 3 YEARS AGO!" But me? I just got it processed to the point where I can actually be in touch with being angry.

When I get quiet, it's usually because I'm tucked up inside the gooshy part of my mind. Dealing with something.

The "something" recently is Children's Memorial Hospital. And the doctor's office and the neurologist's office and the pharmacy.

I just have a hard time talking about what's happening while it's happening especially if it's the kind of happening that scares the ever-living crap out of me. I got to quiet down and let my mind process like a cracked-up gerbil in a wheel until I can breath like a human again.

18 months ago, Bear got sick and spiked a fever. It kept topping out around 104 (f). There was hives and vomiting and shaking. And it didn't go away.

The first couple of days, doctors said it could have been one thing. The next couple of days, well, doctors said maybe something else.

10 days. 10 days of extremely high fever, Emergency Leave from work, visits in and out of the clinic and the hospital, and even my mother flying out.

And then, some combination of drugs seemed to finally work. He got better.

No known cause. No explanation. At first, I couldn't care less. I was as giddy as a Muppet, singing with a Gibb brother on a rainbow of satin.

But then... it came back. Like that dammed cat in that song.

And faded.

18 very long months.

The consensus has been that it is an allergy. But he has tested no severe allergies to any of the common triggers.

He spikes a fever, sometimes a little rash, congestion. Then, a day or so later, fine again. Right now, he has severe sinusitis because it's been too much.

We know that because last week, they strapped him down with velcro and slid him back and forth through a Stargate machine. Much less frightening than the torpedo tubes, you know.

Two days in and out at Children's Memorial Hospital. Where helicopters land in loud thwup-thwups bringing sicker kids in for treatment. Where they give you those restaurant-style flashing beepers when you sign in so you can know when they're ready to see you. Where there's a McDonald's in the basement and $10 Mad Lib books in the bookstore.

As Hospitals go, it rocks. As childhoods go, Hospitals suck.

Bear? Is still sick. In fact, being sick is something that has become part of the weft and weave of our life. He's healthy maybe half his days. The rest of the time it is a swinging 40's dance of 'how healthy - how sick'.

And I hate it. I hate it so much that there are moments, away from him, that I gag and try not to throw up all that anger and fear and frustration that is rotting away inside of me.

But I don't know how to talk about it. My brain is still processing. Processing....


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Comments


Mrs. York, I happened across your blog today and enjoy your writing. I am a former software engineer who's a stay-at-home dad now. At any rate, I wish your son a speedy recovery and I would like to offer your husband 1 piece of advise if I may. My nearly grown daughter was quite sick when she was an infant. Unfortunately, neither I nor the 6 different pediatricians we saw realized it. My wife saw it but we didn't believe her. The doctors said Amanda had NMS (New Mommy Syndrome). Thank God she stuck to her guns. The advice is this: When it involves one of your children, always trust your wife's opinion no matter how many initials follow the other person's name. M.O.M. trumps them all.

Posted by: Ron on March 16, 2007 03:47 PM


Wow, E - I had no idea this was an ongoing thing. I am so sorry. You know my youngest had two months in a row, two years ago, of blazing hot fevers (above 105) that would not respond to medicine. It was ridiculous. Doctors said "virus". I said, "Two months in a row? The same virus? That causes nothing else but thse high fevers?" They said, "Yes." Of course, I Googled and diagnosed everything from Periodic Fever Syndrome to Kawasaki Disease. Ultimately, because the fevers did go away, and they have never come back (thank you, Jesus), and because my husband finally said, "Enough already," after my fifth scary diagnosis, I have accepted: virus. I pray for a similarly benign resolution for Bear (and you) as well. You will be in my prayers!

Posted by: Monica C. on March 14, 2007 01:06 PM


Oh, E. I'm so sorry. My positive thoughts are with you.

Posted by: Eyes on March 13, 2007 10:46 AM


Sending love your way...

Posted by: emily on March 13, 2007 06:25 AM


I was like that a lot in the NICU hell. Damn. People thought I was putting on a brave face, half of the time I just did not know what was going on.

I just wish you the best of luck and praying that Bear gets all better and stays that way soon.

Posted by: Sol on March 12, 2007 11:10 AM


My prayers are with you. Keep processing. I wish I had something helpful to say. Having been in the hospital industry for almost 20 years now...my biggest advice would be to ask lots of questions - even if you think they might seem dumb, and keep notes of what the various specialists tell you. You are Bear's best advocate and, sadly, you can't count on the healthcare professionals to always take the time to read each others notes in the charts well. I don't mean this to be discouraging. And, if anything happened with Ethan, Children's Memorial is where I'd take him!!

Posted by: Kelly on March 12, 2007 09:14 AM


Praying so hard for all of you...

Posted by: Angela Giles Klocke on March 11, 2007 01:03 PM


I'm thinking of you and Bear and CD and hope it all gets resolved quickly. I've been to one of those hospitals and remember how scary it was to look around at all the other manifestly, desperately sick kids and being ashamed for being there as a kind of visitor and feeling like an imposer and also hoping that that was all we would ever be.

Posted by: mom2waihd on March 9, 2007 10:16 PM


How scary, Elizabeth. Anything to do with the kids' health, especially if it's chronic, can freak me right out.

I'll be holding you all in my thoughts and prayers.

Posted by: paige on March 9, 2007 05:48 PM


Good thoughts. And good luck.

Posted by: Hexe on March 9, 2007 04:43 PM


Processing is important...you just keep processing and we'll just keep listening. And praying for Bear and hoping it is just an allergy.

Posted by: Jenn on March 9, 2007 02:12 PM


The processing has to happen - but so does the talking. And, a very important piece, remembering that whatever it is that is happening to Bear isn't you - isn't your husband - isn't your son - and isn't your relationships with them. Talk to us to process - and remember to talk to CD & Bear about the sunshine, the look of the clouds, and that rotten meatloaf you made for dinner. Don't let the sickness swallow you alive.

Posted by: cursingmama on March 9, 2007 01:56 PM


My second son did that sick dance the first 4 years of his life, high fevers, unaccountible sickness for no apparent reason. It was awful. The good news is he's 17 now and never sick (other than the mental teenager thing).
Here's good wishes and thoughts for all y'all.

Posted by: Rootietoot on March 9, 2007 01:36 PM


Gosh I wish I could just come give you a hug. Although I'm really not a hug person. And, well, I don't actually know you. I'm sorry that you're going through illness again - and I hope you're able to take the time to process, cause that's important. I'll be over here, lurking mostly, and just praying that everything gets better. Fast.

Posted by: beth on March 9, 2007 11:34 AM


here listening.

It's ok to be angry and afraid and frustrated. But you knew that, right?

Posted by: Elizabeth on March 9, 2007 10:32 AM