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What It's Like (my side of the story).

May 13, 2005 | Category:



* Note, this entry is PG-13 for language. The topic is close to my heart, and I'm not in a mood to censor my words. Also, this is MY side of the story - not his. It has taken me a year to figure out when and how to finally write this and and I have tried to write in such a way that doesn't violate his privacy.

On NPR, Brooke Shields was talking about her bout with postpartum depression. About finally getting medication and therapy, and then when she felt a little better deciding to go off the medication. Of visions of death and blood and a feeling of disconnectness from her child and hopelessness about her life.

Briefly, she touched on the reaction of her husband Chris. About how the experience still affects him. Them.

Yeah, from this I know.

Not that I have her book deal. Or her legs. Oh, her legs... Or her situation.

No, I had her husband's.

After the birth of our son, I had this life. This husband. This baby. This house. And then a dark cloud rolled over the sky. I didn't understand. I kept expecting my husband to "snap out of it".

Not so much.

So I got a clue that it wasn't just a bad mood. But even then I was still a mushroom in the dark about what was to come.

So maybe, OK, that cloud wasn't going to float away. Yeah, a storm was rolling in. But then, THEN things would eventually return to ... this life, that I was loving so much. My husband would awake one day and be once again that amazing, strong man I'd married.

So I faced the storm and did what I could to respond. If my life had been a house, I would have been boarding up the windows and putting sandbags on the perimeter.

The equivilent was to join a support group and gamely take on my husband's responsibilities on top of the ones I already had. Something bad was happening to us, and I couldn't stand idly by. So I went back to work and pumped my milk into bottles a caregiver could administer. I bought a suit, balanced the checkbook, and made all the sacrifices necessary to be two people.

Looking back, I realize I was living in a fog of just "get through today".

That is what it is like to be married to someone with an illness or a dependency. It happens not just to the them, but to everyone around them.

I had no idea how bad it would get.

One afternoon, I called our religious marriage counselor guy from a parking lot in tears, begging for advice. I told him about the dark cloud that only seemed to grow. I asked for help.

But even with his wisdom, by the time Bear was a year old we were broke, miserable, and in deep trouble. Yes, despite all our best efforts. Despite the counselor, the help, the constant battles to make each day the turnaround. Despite the compassionate support system of friends and family and neighbors all in the siege with us.

Not that he could see any of that goodwill. As I learned later, CD was completely isolated by what was happening inside his mind. There's a sort of tunnel vision of being the one going through it.

As he was striking out and hurting, he couldn't process his environment in any productive way. The pile of bills, the collection calls, the unwashed dishes were all just additional pain triggers if he saw them at all.

I'd grew tired of trying. So I kicked him out for a while. And he stayed away a little while more.

I did it because I was a heartless bitch whose internal alarm clock had gone off. I couldn't understand why everything wasn't better already.

The horrible, agonizing thing, was; neither could he.

The anger and frustration and pain were grew like a demon. The love and forgiveness and faith were all exhausted and hiding under the bed.

Fighting endlessly to keep the darkness from consuming every fucking thing. Watching all the good and light in your life fall under the shadow of what's happening to your partner.

I missed Bear's first steps, while on a business trip. Endlessly on the road trying to make enough money to keep us afloat while impotent against the cloud that was pressing us all flat. I was selfishly, endlessly frenzied. And screaming inside. I kept saying "This is IT. This is bottom. I won't take another step." But then I would.

And sometimes, he would reach out. A heartbreaking smile. A sympathetic expression. "How are YOU holding up?" I was asked. And it was my cue to put on a brave face and be ever so grateful that for a few fleeting moments when I was actually remembered in all the drama.

And as Brooke said in her interview, the weeks quickly become months. There are no quick fixes when you're talking about the human mind. Not medication. Not therapy. Not group meetings or behavioral change. No. It's gonna be a slow climb and it's going to be full of steps backward.

I was in therapy for over a year just to deal with MY anger and hurt. My counselor and I were able to cobble together enough coping mechanisms and skills to help me live my life without always being in reactionary mode. To live with reasonable expectations so I wasn’t constantly feeling disappointed. To drain away enough of the bitterness to allow my soul to breath. To teach me that I absolutely couldn't fix HIM and had to keep my focus on what was in my control instead of what wasn't.

And there's no happy ending. A corner has been turned, but it is a shallow one. There is no moment when the doctor comes in and says everything is going to be all right. The best you get is that everything is better - for now.

And just like in Brooke's marriage, where her husband still holds his breath waiting to see what the mood of the day is, still hunts for signs that darker clouds are rolling back onto the horizon - I, too, have had my facility, my lightness of being, shattered and taped back together. Nothing is clear anymore.

The full cost of what has been lost is only just beginning to be counted. There is no way to go back to that time when I had that life. And so very, very much was lost.

Not that life stopped when the clouds rolled in. No, it continued. And there were still good days and even good weeks. Moments of subdued but very real joy. But it was life under a cloud, shrunken and colder from what it had been before.

And I still mourn those early, sunlit days of being a mom and a wife living such a halcyon dream. I am more fragile now. I am still angry. I have to remind myself to exhale.

Trust and forgiveness (of us both) are coming back in tiny, teeny steps. Feelings of love, long since roped back, aren't reawakening in a burst like the magical last 15 minutes of a movie.

So far, I am deciding to stay. There is no right answer, although many may tell me otherwise. And often do – and on both sides. But there is no right answer.

Things are better, and that gives hope. And hope is a powerful elixir. It can get you through the day. When I can’t picture next year, or next month- I can surrender it to hope.

A day at a time.


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Tagged: Corporate, Mommy, Life



Comments


Your post was so amazing. My husband's father and sister went through terrible times of depression and still struggle with it, and I find that our feelings toward them are so totally altered and poisoned from that time. We know it isn't their fault, and we try to understand, but you still peek over your shoulder all the time waiting for it to come back.

Thank you for sharing. Depression is so scary and difficult to fix and more people need to talk about it.

Posted by: halloweenlover on May 18, 2005 02:43 PM


Wow, what great writing. This one touches me deep inside, and I keep finding myself nodding along as I read it repeatedly.

You are right, there are no quick fixes, no easy answers. Just a long, grinding climb with lots of slipping back.

Posted by: ben on May 17, 2005 04:30 PM


I too have dealt with both sides of depression and on either side the biggest feeling I think is helplessness. The person who is sick is helpless to pull themself out of the funk and the person outside feels helpless to solve the problem. Stay strong. You have an amazing ability to bounce back and I admire you more and more each post for it.

Posted by: Jazzy on May 17, 2005 10:59 AM


A day at a time I too stayed. I needed to stay because of my son, my love and the vision we once had. In the process I discovered there was no right answer. So instead I found a shelter in my friends and when they were gone it shifted to my son, my writing and my work.

A day at a time I became free. The dark clouds returned, and the storm brewed once again. While the waves pushed my shipped in every direction all around me I was forced to make a decision. I chose the least painful and the most serene decision for all concerned. I finally chose to pull anchor and move on.

I think that having realized that this new normal was not what I wanted for my son made it infinitely easier. The truth is my partner was in a place that he couldn't help being but I could. So I opted for sunshine and life. As you say, in retrospect I still mourn the loss of our visions and dreams, but less so; finally without regret, for today at least.

Thank you for your honesty and bravery in sharing this with us.

Posted by: Michele on May 17, 2005 09:38 AM


This was a beautiful entry. So honest and real and more than a little haunting. I hope the dark stays away.

Posted by: erraticblogmatic on May 17, 2005 07:10 AM


Man, both sides of the fence hurt, don't they? I was fine with the first child, but not so much with the second. He was so sick all the time and I spiraled downhill!! My husband couldn't understand and the hardest thing is not being able to make him understand. There are no words to explain what is going on inside you. You don't know how to cope with the wide range of thoughts and feelings that you have in a days time. My coping mechanism has always been laughter. When you feel unsure, alone - make a joke - if others laugh with you, they won't see the inadequecies. This can also hurt you...if your laughing, then you cannot be depressed... right? It's hard. Your supposed to take the medications, but the medications make you feel drugged out and weird, so which is worse? Being depressed, and crying all the time or living your life like your in the twilight zone all the time?

I feel for you guys, and understand! Do you think this much depression has always existed and there just wasn't the means to share?

Posted by: Misty on May 16, 2005 11:27 AM


I never thought too much about looking at it from the other side. I have been suffering from clinical depression due to chronic pain and health issues. Initially, after being diagnosed and put on antidepressants I wanted to talk to my husband about how HE felt, and have him read some books for support, but he was not interested. he loves and supports me, but doesn't want to think too much about what could be.

This was such a well written post - well done for writing it. I felt your soul come through.

Posted by: Kiki on May 15, 2005 10:53 PM


Again...you've opened up your heart and your life to us. You've taught me something once again. I'm so glad to hear that there are 'tiny, teeny steps' happening. A glimmer of the joy that once way. There is hope. I too have moments where I have to surrender to the idea of that hope.

Posted by: Grace on May 13, 2005 11:48 PM


You really aren't alone, you know. As much as I know it feels like it. Your post cracked my heart. Then I read Michele's comment and it shattered into bits. I think my husband, too, could have written this.

Posted by: Jennifer on May 13, 2005 09:21 PM


Elizabeth, you are so strong, brave, patient, caring, loving--AMAZING. I said a little prayer for you after I read this. I hope you have bright days in front of you, and soon.

Posted by: Bond Girl on May 13, 2005 04:18 PM


I've been there, I've been there, I have been there. I can almost completely relate (and I mean, one hundred percent) to what you're saying.

In a nutshell, my husband and I were very happily married for the first two years of our marriage. Right before our first daughter was born, he was laid off. It ended up that he was laid off for a year.

Me, nursing a newborn around the clock, going to work all day, dealing with a baby who had to go to daycare (I'd wanted a nanny; he had the nerve to say we couldn't afford it); him, at home all day, napping, playing a TON of golf, playing video games and surfing the net, and yes, looking for a job - but not hustling for his family in the meantime (i.e., no job at Barnes & Noble for him).

There is so much video footage of me, in work clothes, feeding the baby, bathing the baby, etc., and him, scruffy and haggard in the background.

But his dad had died a few months before all of this, so I cut him some slack - or at least I tried to. The reality was that I built up a lot of resentment and anger. The whole thing changed my perception of him as a person.

Working my way out of that abyss has been really tough. And it was something I had to do on my own - because all that had happened was that he had shown me who he really was, and I just didn't like it - so there was nothing he could now do to "fix" that. I just had to work through it on my own . . . and things have slowly gotten better.

They will never be the way they were pre-2002 - but I hope they will be good enough (or maybe even better).

I hope you find resolution and peace, no matter what. Feel free to write me anytime.

Posted by: Monica C. on May 13, 2005 04:01 PM


Bless your heart!! I have been in the same places as NotDonnaReed, dated and engaged to a man with bi-polar disorder, went with him to his shrink appointments, weathered lots of critical comments and so forth. All of this is to say you need to do what you need to do to look after yourself and Bear. CD will always land on his feet. You and Bear are the ones I am concerned about.
I am so proud of you for sharing this and for looking out for yourself. Good for you that CD left the house. You are not heartless. If anything you are very compassionate and empathetic.
My therapy helped me enormously in dealing with my situation as well as focusing on re-building my life. I encourage you to think of a life filled with joy, love and abundance. Regardless of whether CD is present or not. I encourage you to enjoy every moment with Bear and if possible CD.
During the bad times, I would challenge myself to create the "perfect day" and then to begin to bring that into my life. What is your perfect day??
Hugs and lots of warm, loving support!!!

Posted by: Azalea on May 13, 2005 03:37 PM


Mental illness is so much more frustrating than physical illness, because there are rarely any definitive diagnoses or cures. It's a lot of trial and error, a lot of blind alleys, and you can't help but think, even if you don't say it out loud, that maybe your loved one just isn't trying very hard.

I've seen mental illness from both sides, and believe me it's a lot harder to be the sick one. The crushing weight of guilt, anger, and futility is really difficult to bear. You know that you're responsible for taking your family to this dark, joyless place, but you feel powerless to change anything. It's easy to understand why a lot of people slide further into the abyss -- or even kill themselves -- instead of struggling inch by inch to climb out of it.

In my mind, I often compare mental illness to diabetes. Thinking of it as a physical defect over which you have little or no control somehow makes it less personal, less shameful. Like diabetics, most people with mental illness never really "recover"; they just learn how to manage their condition. And most of them, if they're willing to make the effort, live happy, productive lives.

You may never again have that innocent faith in tomorrow. But, in some ways, it might make you appreciate today that much more.

Posted by: notdonnareed on May 13, 2005 01:13 PM


I'd never heard of the husband going through that sort of depression before.

It shows the depth of your strength and courage that you're able to share this. Here's hoping for better times and a bright future for you all.

Posted by: Ted on May 13, 2005 11:06 AM


God Bless you for sharing your story. I never really thought about fathers going through depression until I read your post. I suppose I always expected the guy to be there for the mom when she breaks down, kind of like what I've been doing myself these past two days.

You are such a strong woman, for what you did, and what you continue to do.

Posted by: Robyn on May 13, 2005 10:39 AM


Michele, Kimberly;

I'm thinking of you with all the empathy in my heart. It feels so alone, how amazing to realize that others understand...

Thanks for having the courage to comment. That awes me.

Posted by: Elizabeth on May 13, 2005 10:30 AM


Oh, Elizabeth, I've been in a similar place this past year, while my husband has struggled to recuperate from cancer AND get through the horrible depression that followed his surgery. His depression took me down for a while, too; we have both needed therapy and medication to make it to the first shallow corner, turned about a month ago.

Thanks for writing this. I'm wishing you, CD and Bear more sunlit days to come.

Posted by: Kimberly on May 13, 2005 10:29 AM


I am out and out crying. Really crying. And each time I read this I cry some more. Because I hate that you went through this, but also because I'd imagine Mike would write this post if he had a blog. And that makes me so sad.

Posted by: Michele on May 13, 2005 10:27 AM


thank you for writing that, it was beautiful (although heartbreaking) to read. as pissy as I get at my husband sometimes for being stupid and inconsiderate, I do need to thank my stars that he's healthy and functional. I hate that you missed so much of Bear's first years, though. that just totally sucks. I missed Jake's first steps, too, when I was at work.

Jen

Posted by: Jen_Jake'smom on May 13, 2005 09:43 AM